Meet our Honorees
Camp Cambria Market Representative
As Corporate Champion, April is volunteering to help raise awareness for juvenile arthritis and to assist in raising corporate support for the 2019 Art for Arthritis on Friday, April 12, 2019.
Why did April choose the Arthritis Foundation? “The company I work for, Cambria, is very passionate about Juvenile Arthritis and when I actually sat down to think about arthritis. A lot of people in my life are affected by arthritis and it did become a factor in their everyday lives.”
Why share with other business leaders? There are small things we can do in business that make a huge impact when we all join together.
What did you learn about juvenile arthritis? Watching the footage of Camp Cambria and realizing this magical place allows for these children to attend camp and run and play just like normal children.
Why does your company believe community engagement and support is important? Camp Cambria is a six-day residential summer camp experience hosted by CAMP CAMBRIA FOUNDATION for kids and teens ages 8-17 with juvenile arthritis or a related condition. Funded in part by the CAMP CAMBRIA CLASSIC golf tournament held annually, the camp is designed to help campers relax, have fun, learn new skills, build confidence, and gain new tools for managing pain, stress and other challenges, Camp Cambria is held every summer in Maple Lake, Minnesota, and McKellar, Ontario.
Does anyone in your family have arthritis? My grandmother had arthritis and has since passed, but it very much affected her life. Our very special neighbor has rheumatoid arthritis and our daughter and her spend a lot of time baking, sewing and gardening, an adopted grandmother of sorts.
This is April’s 1st year with Art for Arthritis. She also shares her time with some very important people: her husband, Heath, and 10-year-old daughter, Macy, in 4th Grade.
2019 Youth Artist
Brooklyn was diagnosed with Polyarticular Arthritis in 2012 when she was 3 years old. She travels to Omaha, NE for her care. Brooklyn is an energetic 9-year-old and does not let this disease hold her back, she is in the 4th grade at Clark Elementary in Le Mars, IA – her favorite subject is Art, but this year she has also added Science to her favorite subjects. Brooklyn loves caring for the family’s baby chickens! She’s joined gymnastics this year and has been having a blast learning how to test her limits for her body. Brooklyn has a new little brother Everett (almost 1) and is awaiting the arrival of a baby sister this summer. Brooklyn is happiest when spending time with her mom and her siblings which includes a sister Kaeleigh, age 12 and brothers Brody (6) and Jaxson (5). She loves playing school with them and bossing them around as the teacher. Brooklyn’s goal is to be a doctor.
What Brooklyn’s family want people to know about juvenile arthritis … “Although sometimes its invisible, the pain is always there. It is a rollercoaster from the beginning – from understanding the disease to treating it.” This is Brooklyn’s third year as a youth artist.
2019 Youth Artist
Delaney was diagnosed with Juvenile Spondyloarthropathy Arthritis when she was 10 years old. She receives her care from Dr. Grant Syverson at Sanford Children’s Hospital. Delaney in the 9th grade at Baltic High School – her favorite subject is algebra. Delaney enjoys playing the piano and “hanging” with her friends. Delaney loves pets and has 2 dogs – Dottie and Baxter, 2 cats – Hazel and Oliver, and a lizard named Yoda. Delaney also enjoys spending time with her family which includes her parents, 2 older brothers and 2 older sisters.
Delaney does not talk with her friends much about her diagnosis, although her friends know that she has
juvenile arthritis and she has shared with them how it affects her.
In 2017, Delaney served as the Jingle Bell Run Youth Champion. Delaney goal is to be a pediatric nurse. This is Delaney’s third year as a youth artist.
2019 Youth Artist
Gage was diagnosed with Systemic Juvenile Idiopathic Arthritis in 2016 when he was 4 years old, he was unable to walk for about 1 month until the disease was brought under control. After about 1 year of medications, including monthly shots, he was able to come off of all medications and spend his days a regular kiddo. His favorite activities are swimming, drawing, and video games. Gage will be starting 1st grade in the fall and is quite the math whiz! Gage takes very good care of his little sister, Myla, and is always tumbling around with his younger brother, Brock. Gage's family has been so thankful that he is now in unmedicated remission, but the fear of wondering when the pain will come back will always be present. In the fall of 2018, his symptoms began to return again, but were able brought under control much faster with the help of his great rheumatologist, Dr. Syverson at Sanford Children’s Hospital. Gage wants to be a "book maker", video game maker, and an artist when he grows up.
One thing Gage's family wants people to know about juvenile arthritis is … this battle may never be over, there is no cure for this disease, all we can do is keep providing support and staying positive for these mighty little warriors. This is Gage’s 3rd year as a youth artist.
2019 Youth Artist
Catherine was diagnosed with Systemic Juvenile Idiopathic Arthritis in 2013 when she was 4 years old, Catherine has continued to live with the pain and limitations of arthritis for the last 6 years. She travels to Mayo Clinic in Rochester, MN for her care. Catherine’s parents say that despite years of blood work, testing, shots, doctors’ appointments, lots of on-going and unpredictable pain, she continues to smile and to have hope that one day she will get better. Catherine is in the 4th grade and is home-schooled. She loves science, enjoys reading, puzzles and coloring. Catherine is happiest when spending time with her family which includes two sisters – Lucia, and Beatrice and two brothers Michael and Matthew. Catherine’s goal is to be a marine biologist.
What Catherine’s family want people to know about juvenile arthritis … “This isn’t your Grandma’s arthritis! These kids face serious pain and complications. They often need big-time medications just to function. Even with aggressive treatment, last year Catherine’s arthritis ate away the cartilage in her hips. Now she waits to be approved for a double hip replacement.” This is Catherine’s 5th year as a youth artist.
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